Technical report: ethical and policy issues in genetic testing and screening of children.

Ross LF, Saal HM, David KL, Anderson RR.

Source

1] Department of Pediatrics, University of Chicago, Chicago, Illinois, USA [2] Department of Medicine, MacLean Center for Clinical Medical Ethics, University of Chicago, Chicago, Illinois, USA [3] Division of Human Genetics, Cincinnati Children's Hospital Medical Center, Cincinnati, Ohio, USA.

Abstract

The genetic testing and genetic screening of children are commonplace. Decisions about whether to offer genetic testing and screening should be driven by the best interest of the child. The growing literature on the psychosocial and clinical effects of such testing and screening can help inform best practices. This technical report provides ethical justification and empirical data in support of the proposed policy recommendations regarding such practices in a myriad of settings.Genet Med advance online publication 21 February 2013Genetics in Medicine (2013); doi:10.1038/gim.2012.176.