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Preventing Chronic Disease | Practical Guidance and Ethical Considerations for Studies Using Photo-Elicitation Interviews - CDC

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Preventing Chronic Disease | Practical Guidance and Ethical Considerations for Studies Using Photo-Elicitation Interviews - CDC



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Practical Guidance and Ethical Considerations for Studies Using Photo-Elicitation Interviews

Eva Bugos, BS; Rosemary Frasso, PhD; Elizabeth FitzGerald, BA; Gala True, PhD; Anna M. Adachi-Mejia, PhD; Carolyn Cannuscio, ScD

Suggested citation for this article: Bugos E, Frasso R, FitzGerald E, True G, Adachi-Mejia AM, Cannuscio C. Practical Guidance and Ethical Considerations for Studies Using Photo-Elicitation Interviews. Prev Chronic Dis 2014;11:140216. DOI:http://dx.doi.org/10.5888/pcd11.140216External Web Site Icon.
PEER REVIEWED

Abstract

Photo-elicitation is a qualitative interviewing technique that has gained popularity in recent years. It is the foundation for photovoice projects and is a tool well-suited for community-based participatory research. Photo-elicitation yields rich data, and interview participants say these interviews encourage community awareness and engagement. This article draws on 9 studies, conducted by researchers at 3 institutions (the University of Pennsylvania, the Philadelphia Veterans Affairs Medical Center, and the Geisel School of Medicine at Dartmouth) in partnership with community-based organizations and students, in which 303 participants completed photo-elicitation interviews. We offer 8 practical suggestions for overcoming challenges encountered during photo-elicitation research and for managing ethical concerns about the use of visual data in public health research. Our guidelines can inform study design, protocol development, and institutional review board approval.

Acknowledgments

The University of Pennsylvania IRB approved the following studies: HOPPP; Youth Vision; A Place to Call Home; journey2home; Exploring disparities in an urban setting: research students turned researchers; Learning by doing: students explore the meaning of safety on an urban campus; and Under pressure: students explore stress on an urban campus. Funding for HOPPP was provided by the Robert Wood Johnson Foundation Health & Society Scholars Program at the University of Pennsylvania. Funding for Youth Vision was provided by cooperative agreement no. 1U58DP003557 from the Centers for Disease Control and Prevention, US Department of Health and Human Services, and Get Healthy Philly. A Place to Call Home was supported by the Robert Wood Johnson Foundation Health & Society Scholars Program and the Mixed Methods Research Laboratory at the University of Pennsylvania, as well as the Philadelphia Department of Human Services, the Hummingbird Foundation, the National Endowment for the Arts, the Surdna Foundation, WHYY, People’s Emergency Center, Philadelphia VIP, OPPORTUNITIES-PA, Weigle Information Commons, the Penn Project for Civic Engagement, and West Philadelphia Real Estate. Funding for journey2home comes from the City of Philadelphia Department of Human Services, the Hummingbird Foundation, and the Patricia Kind Family Foundation. From War to Home: Photovoice as an Educational Intervention to Improve Care of Operation Enduring Freedom/Operation Iraqi Freedom Veterans was approved by the Philadelphia VA Medical Center IRB and funded by VA Health Services Research and Development grant PPO 10-255. Fruits, Vegetables, Activity, and Sleep: A Dartmouth Photovoice Study was approved by the Dartmouth College Committee for the Protection of Human Subjects and funded by American Cancer Society Research grant nos. IRG-82-003-25 and IRG-82-003-27.

Author Information

Corresponding Author: Carolyn Cannuscio, ScD, Perelman School of Medicine, University of Pennsylvania, Anatomy Chemistry Building, Room 145, 3620 Hamilton Walk, Philadelphia, PA 19104. Telephone: 215-746-4175. E-mail: cannusci@wharton.upenn.edu.
Author Affiliations: Eva Bugos, Elizabeth FitzGerald, Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania; Rosemary Frasso, Perelman School of Medicine, Center for Public Health Initiatives, and School of Nursing, University of Pennsylvania, Philadelphia, Pennsylvania; Gala True, Center for Health Equity Research and Promotion, Philadelphia Veterans Affairs Medical Center, and Perelman School of Medicine at the University of Pennsylvania, Philadelphia, Pennsylvania; Anna M. Adachi-Mejia, Geisel School of Medicine at Dartmouth, Norris Cotton Cancer Center, and Dartmouth Institute for Health Policy and Clinical Practice, Lebanon, New Hampshire. Dr Cannuscio is also affiliated with the Center for Public Health Initiatives at the University of Pennsylvania, Philadelphia, Pennsylvania.

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