Health literacy ► Public Health Genomics Knowledge Base (v1.0)

Public Health Genomics Knowledge Base (v1.0)












Last Updated: Mar 10, 2016

• Health literacy and disease-specific knowledge of caregivers for children with sickle cell disease.
  Carden Marcus A et al. Pediatric hematology and oncology 2016 Mar 1-13
• State of Kansas Genetics Plan 2010[PDF 6.71 MB]
  Disease: Multiple Diseases; Type: Data|Policy|Program; State: Kansas
• The Many Facets of Genetic Literacy: Assessing the Scalability of Multiple Measures for Broad Use in Survey Research.
  Abrams Leah R et al. PloS one 2015 10(10) e0141532
• CDC Health Literacy Information 
• Are physicians prepared for whole genome sequencing? a qualitative analysis.
  Christensen K D et al. Clinical genetics 2015 Jun
• Effects of racial and ethnic group and health literacy on responses to genomic risk information in a medically underserved population.
  Kaphingst Kimberly A et al. Health psychology : official journal of the Division of Health Psychology, American Psychological Association 2015 Feb (2) 101-10
• Genetic counselors and health literacy: the role of genetic counselors in developing a web-based resource about the Affordable Care Act.
  Mann Sylvia et al. Journal of genetic counseling 2015 Jun (3) 433-7
• A Health Literacy Program Using Family Health History for Young Black Rural Students: Implications for Reducing Health Disparities.
  Foster Pamela Payne et al. J Health Care Poor Underserved 2015 26(3) 662-7
• Factors affecting recall of different types of personal genetic information about Alzheimer's disease risk: the REVEAL study.
  Besser Andria G, et al. Public health genomics 2015 0 (2) 78-86
• [Associations between ALDH2 and ADH1B Genotypes and Ethanol-Induced Cutaneous Erythema in Young Japanese Women].
  Hayashida Mariko, et al. Nihon eiseigaku zasshi. Japanese journal of hygiene 2015 0 (2) 134-8
• Interest in genomic SNP testing for prostate cancer risk: a pilot survey.
  Hall Michael J et al. Hered Cancer Clin Pract 2015 13(1) 11
• Factors Affecting Informed Decision-Making in Women with Increased Breast Cancer Risk or DCIS Pursuing Contralateral Prophylactic Mastectomy.
  Valente J et al. Cancer Epidemiol. Biomarkers Prev. 2015 Apr 24(4) 761
• Ask Not What Personalized Medicine Can Do for You - Ask What You Can Do for Personalized Medicine.
  Budin-Ljøsne Isabelle et al. Public Health Genomics 2015 Mar 6.
• Developing patient-friendly genetic and genomic test reports: formats to promote patient engagement and understanding.
  Haga Susanne B, et al. Genome medicine 2014 0 (7) 58
• Genome-based health literacy: a new challenge for public health genomics.
  Syurina E V, et al. Public health genomics 2011 0 (4-5) 201-10
• Health literacy: the essential catalyst for the responsible and effective translation of genome-based information for the benefit of population health.
  Sørensen Kristine, et al. Public health genomics 2011 0 (4-5) 195-200

Relevant Resources

• Cancer Genomics and Epidemiology Navigator (CGEN)
• Genetics and Genomics Competencies Center (G2C2)
• NIH Genetic Testing Registry
• NIH MedGen Database
• Online Mendelian Inheritance in Man (OMIM)
• PharmGKB