Last Updated: May 19, 2016
- Ethical considerations in biobanks: how a public health ethics perspective sheds new light on old controversies.
Virani Alice Hawkins et al. Journal of genetic counseling 2015 Jun 24(3) 428-32 - Increasing participation in genomic research and biobanking through community-based capacity building.
Cohn Elizabeth Gross et al. Journal of genetic counseling 2015 Jun 24(3) 491-502 - Public participation in genetic databases: crossing the boundaries between biobanks and forensic DNA databases through the principle of solidarity.
Machado Helena et al. Journal of medical ethics 2015 Oct 41(10) 820-4 - A template for broad consent in biobank research. Results and explanation of an evidence and consensus-based development process.
Strech D et al. European journal of medical genetics 2016 Apr 59(6-7) 295-309 - 23andMe: a new two-sided data-banking market model.
Stoeklé Henri-Corto et al. BMC medical ethics 2016 17(1) 19 - Merging Electronic Health Record Data and Genomics for Cardiovascular Research: A Science Advisory From the American Heart Association.
Published on 2016 by American Heart Association - Toward Global Biobank Integration by Implementation of the Minimum Information About BIobank Data Sharing (MIABIS 2.0 Core).
Merino-Martinez Roxana et al. Biopreservation and biobanking 2016 Mar - Germline genetics of cancer of unknown primary (CUP) and its specific subtypes.
Hemminki Kari, et al. Oncotarget 2016 3 - Broad Consent for Genomic Research and Biobanking: Perspectives from Low- and Middle-Income Countries.
Tindana Paulina et al. Annual review of genomics and human genetics 2016 Feb - Improving the informed consent process in international collaborative rare disease research: effective consent for effective research.
Gainotti Sabina et al. European journal of human genetics : EJHG 2016 Feb - Participant views on consent in cancer genetics research: preparing for the precision medicine era.
Edwards Karen L et al. Journal of community genetics 2016 Jan - Identifying public expectations of genetic biobanks.
Critchley Christine et al. Public understanding of science (Bristol, England) 2016 Jan - Building the Partners HealthCare Biobank at Partners Personalized Medicine: Informed Consent, Return of Research Results, Recruitment Lessons and Operational Considerations.
Karlson Elizabeth W et al. Journal of personalized medicine 6(1) - UK biobank: an open access resource for identifying the causes of a wide range of complex diseases of middle and old age.
Sudlow Cathie et al. PLoS medicine 2015 Mar 12(3) e1001779 - Regulation of Biobanks in France.
Rial-Sebbag Emmanuelle et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 754-65 - Spanish Regulation of Biobanks.
Nicolás Pilar et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 801-15 - Genomic Databases and Biobanks in Denmark.
Hartlev Mette et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 743-53 - Biobanking and Privacy Law in Brazil.
Dallari Sueli Gandolfi et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 714-25 - Biobanking and Privacy Laws in Australia.
Chalmers Don et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 703-13 - International Guidelines for Privacy in Genomic Biobanking (or the Unexpected Virtue of Pluralism).
Thorogood Adrian et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 690-702 - Genomic Databases and Biobanks in Israel.
Siegal Gil et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec 43(4) 766-75 - Biobanks, Data Sharing, and the Drive for a Global Privacy Governance Framework.
Dove Edward S et al. The Journal of law, medicine & ethics : a journal of the American Society of Law, Medicine & Ethics 2015 Dec (4) 675-89 - A systematic literature review of individuals' perspectives on broad consent and data sharing in the United States.
Garrison Nanibaa' A et al. Genetics in medicine : official journal of the American College of Medical Genetics 2015 Nov - Returning a Research Participant's Genomic Results to Relatives: Perspectives from Managers of Two Distinct Research Biobanks
GM Petersen et al. J Law, Medicine and Ethics, Fall 2015 - Million Veteran Program (MVP): A Mega-Biobank to Study Genetic Influences On Health and Disease.
Gaziano John Michael et al. Journal of clinical epidemiology 2015 Oct - Estonia Wants to Collect the DNA of All Its Citizens
the Atlantic, October 2015 - Biobanks and the Future of Genome Research,
by Jeanne Erdmann, Genome Magazine, September 30, 2015 - Biobanks and the future of genome research
Genome Magazine, September 30, 2015 - Participant Satisfaction With a Preference-Setting Tool for the Return of Individual Research Results in Pediatric Genomic Research.
Holm Ingrid A et al. J Empir Res Hum Res Ethics 2015 Oct 10(4) 414-26 - Attitudes of the general public towards the disclosure of individual research results and incidental findings from biobank genomic research in Australia.
Fleming J et al. Intern Med J 2015 Sep 21.
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