lunes, 20 de junio de 2016

Survey Launch on Public Attitudes Toward Genomic Data Sharing - Bio-IT World

Survey Launch on Public Attitudes Toward Genomic Data Sharing - Bio-IT World



Survey Launch on Public Attitudes Toward Genomic Data Sharing



By Allison Proffitt
June 13, 2016 | The Global Alliance for Genomics and Health (GA4GH) and the Wellcome Genome Campus have together launched a video series and survey to explore public attitudes toward genetic data handling.
The project—Your DNA, Your Say—comprises nine short films to educate viewers on what genomic data is, and how it can be used, accessed, and shared by researchers. After each video, viewers are invited to answer a series of survey questions about their own views of genomic data sharing.
“Genomic data sharing needs to happen on a massive scale in order to realize the potential of genomics, but in order to do that data sharing you need people to donate their data,” explains Anna Middleton, principle social scientist at the Wellcome Genome Campus, who is leading the project.
“There’s very little research out there that has actually gathered people’s views toward this, and what they think about the sharing process, what they would like to be made available, for what purposes, how connected they’d like to be to the process. And so we decided to… gather attitudes, values, and beliefs toward this whole area of genomic data sharing.”

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