Last Updated: Jul 15, 2016
- Type 2 diabetes: genetic data sharing to advance complex disease research
J Flannick et al, Nature Rev Genetics, July 2016 - GenomeConnect: matchmaking between patients, clinical laboratories, and researchers to improve genomic knowledge.
Kirkpatrick Brianne E et al. Human mutation 2015 Oct 36(10) 974-8 - Making sense of big data in health research: Towards an EU action plan.
Auffray Charles et al. Genome medicine 2016 8(1) 71 - Data Sharing and Inductive Learning — Toward Healthy Birth, Growth, and Development
N. L'ntshotsholé Jumbe, et al, NEJM, June 23, 2016 - The ups and downs of data sharing in science
Nature editorial, June 21, 2016 - Knowing who to trust: exploring the role of 'ethical metadata' in mediating risk of harm in collaborative genomics research in Africa.
de Vries Jantina et al. BMC medical ethics 2014 1562 - Survey Launch on Public Attitudes Toward Genomic Data Sharing
A Proffit, Bio IT World, June 2016 - A federated ecosystem for sharing genomic, clinical data
Global Alliance for Genomics and Health, Science, June 8, 2016 - Sharing genomic, clinical data
EMBL-EBI, June 2016 - Global Alliance for Genomics & Health Argues for Federated Data Ecosystem
BioIT World, June 9, 2016 - PLOS Genetics Data Sharing Policy: In Pursuit of Functional Utility.
Barsh Gregory S et al. PLoS genetics 2015 Dec 11(12) e1005716 - U.S. project launched to promote data sharing by cancer researchers
Reuters, June 6, 2016 - Newly launched Genomic Data Commons to facilitate data and clinical information sharing
NCI, June 6, 2016 - Why an integrated network of genomic and clinical information on cancer is essential
Dog Lowy, NCI director, The Medium, June, 2016 - After a prominent gene-testing firm declined to give patients their complete data, ACLU filed a legal complaint
J Couzin-Frankel, Science Magazine, May 19, 2016
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