Making sense of big data in health research: Towards an EU action plan. - PubMed - NCBI
Genome Med. 2016 Jun 23;8(1):71. doi: 10.1186/s13073-016-0323-y.
Making sense of big data in health research: Towards an EU action plan.
Auffray C1,2,
Balling R3,
Barroso I4,
Bencze L5,
Benson M6,
Bergeron J7,
Bernal-Delgado E8,
Blomberg N9,
Bock C10,11,12,
Conesa A13,14,
Del Signore S15,
Delogne C16,
Devilee P17,
Di Meglio A18,
Eijkemans M19,
Flicek P20,
Graf N21,
Grimm V22,
Guchelaar HJ23,
Guo YK24,
Gut IG25,
Hanbury A26,
Hanif S27,
Hilgers RD28,
Honrado Á29,
Hose DR30,
Houwing-Duistermaat J31,
Hubbard T32,33,
Janacek SH20,
Karanikas H34,
Kievits T35,
Kohler M36,
Kremer A37,
Lanfear J38,
Lengauer T12,
Maes E39,
Meert T40,
Müller W41,
Nickel D42,
Oledzki P43,
Pedersen B44,
Petkovic M45,
Pliakos K46,
Rattray M41,
I Màs JR47,
Schneider R48,
Sengstag T49,
Serra-Picamal X50,
Spek W51,
Vaas LA36,
van Batenburg O51,
Vandelaer M52,
Varnai P53,
Villoslada P54,
Vizcaíno JA20,
Wubbe JP55,
Zanetti G56,57.
Abstract
Medicine and healthcare are undergoing profound changes. Whole-genome sequencing and high-resolution imaging technologies are key drivers of this rapid and crucial transformation. Technological innovation combined with automation and miniaturization has triggered an explosion in data production that will soon reach exabyte proportions. How are we going to deal with this exponential increase in data production? The potential of "big data" for improving health is enormous but, at the same time, we face a wide range of challenges to overcome urgently. Europe is very proud of its cultural diversity; however, exploitation of the data made available through advances in genomic medicine, imaging, and a wide range of mobile health applications or connected devices is hampered by numerous historical, technical, legal, and political barriers. European health systems and databases are diverse and fragmented. There is a lack of harmonization of data formats, processing, analysis, and data transfer, which leads to incompatibilities and lost opportunities. Legal frameworks for data sharing are evolving. Clinicians, researchers, and citizens need improved methods, tools, and training to generate, analyze, and query data effectively. Addressing these barriers will contribute to creating the European Single Market for health, which will improve health and healthcare for all Europeans.
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