Featured collection: Translation in healthcare: ethical, legal, and social implications
Translation in healthcare: ethical, legal, and social implications
Edited by Donna Dickenson, Sandra Soo-Jin Lee, and Michael Morrison
New technologies are transforming and reconfiguring the boundaries between patients, research participants and consumers, between research and clinical practice, and between public and private domains. From personalised medicine to big data and social media, the new kinds of interactions enabled by these platforms hold the potential to empower citizens, challenge long-standing ideas such as privacy, and raise fundamental questions about how the translational patient pathway should be organised.
The ‘Translation in Healthcare: Exploring the Impact of Emerging Technologies’ conference 2015 hosted by the Centre for Health, Law and Emerging Technologies (HeLEX) at the University of Oxford brought together a wide range of voices to discuss and think more deeply about the technological, legal, ethical, and social challenges raised by new technologies in healthcare. In this cross-journal collection articles are brought together from BMC Medical Ethics and BMC Medical Genomics.
This collection of articles has not been sponsored and articles have undergone the journal’s standard peer-review process. The Guest Editors declare no competing interests.
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Citizen science or scientific citizenship? Disentangling the uses of public engagement rhetoric in national research initiatives
The language of “participant-driven research,” “crowdsourcing” and “citizen science” is increasingly being used to encourage the public to become involved in research ventures as both subjects and scientists. ...BMC Medical Ethics 2016 17:33Published on: 4 June 2016 - RESEARCH ARTICLE
Attitudes to incorporating genomic risk assessments into population screening programs: the importance of purpose, context and deliberation
The use of an overall risk assessment based on genomic information is consistent with precision medicine. Despite the enthusiasm, there is a need for public engagement on the appropriate use of such emerging t...BMC Medical Genomics 2016 9:25Published on: 23 May 2016 - DEBATE
Clinical decision-making and secondary findings in systems medicine
Systems medicine is the name for an assemblage of scientific strategies and practices that include bioinformatics approaches to human biology (especially systems biology); “big data” s...BMC Medical Ethics 2016 17:32Published on: 21 May 2016 - DEBATE
Between Scylla and Charybdis: reconciling competing data management demands in the life sciences
The widespread sharing of biologicaConcluding Comments: Teaching Responsible Datal and biomedical data is recognised as a key element in facilitating translation of scientific discoveries into novel clinical a...BMC Medical Ethics 2016 17:29Published on: 17 May 2016 - RESEARCH ARTICLE
Patient and interest organizations’ views on personalized medicine: a qualitative study
Personalized medicine (PM) aims to tailor disease prevention, diagnosis, and treatment to individuals on the basis of their genes, lifestyle and environments. Patient and interest organizations (PIOs) may pote...BMC Medical Ethics 2016 17:28Published on: 13 May 2016 Articles
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Steps toward improving ethical evaluation in health technology assessment: a proposed framework
Published on: 6 June 2016 - DEBATE
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Clinical decision-making and secondary findings in systems medicine
Published on: 21 May 2016 - RESEARCH ARTICLE
Evaluation of moral case deliberation at the Dutch Health Care Inspectorate: a pilot study
Published on: 21 May 2016
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