Data sharing :: https://phgkb.cdc.gov/GAPPKB/phgHome.do :: Data sharing

https://phgkb.cdc.gov/GAPPKB/phgHome.do




Last Posted: Apr 06, 2017

---

• A qualitative study of adolescents' understanding of biobanks and their attitudes toward participation, re-contact, and data sharing.  
  Murad Andrea M et al. American journal of medical genetics. Part A 2017 Apr 173(4) 930-937
• Ethical Legal and Social Issues of Biobanking: Past, Present, and Future.  
  Bledsoe Marianna J et al. Biopreservation and biobanking 2017 Apr
• Bedside Back to Bench: Building Bridges between Basic and Clinical Genomic Research.  
  Manolio Teri A et al. Cell 2017 Mar 169(1) 6-12
• Towards a Global Cancer Knowledge Network: Dissecting the current international cancer genomic sequencing landscape.  
  Vis D J et al. Annals of oncology : official journal of the European Society for Medical Oncology 2017 Feb
• Personalized medicine as a model of care to improve patient outcomes, communication, and reduce cost.  
  Davis John M et al. Journal of clinical oncology : official journal of the American Society of Clinical Oncology 2016 Jan 34(3_suppl) e270
• Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.  
  de Vries Jantina et al. BMC medical ethics 2017 Feb 18(1) 8
• The Undiagnosed Diseases Network: Accelerating Discovery about Health and Disease.  
  Ramoni Rachel B et al. American journal of human genetics 2017 Feb 100(2) 185-192
• Evolving health care through personal genomics.  
  Rehm Heidi L et al. Nature reviews. Genetics 2017 Jan
• Ten Simple Rules to Enable Multi-site Collaborations through Data Sharing  
  MR Boland et al, Plos Comp Biol, January 2017
• Ten Simple Rules to Enable Multi-site Collaborations through Data Sharing.  
  Boland Mary Regina et al. PLoS computational biology 2017 Jan (1) e1005278
• An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health.  
  Rahimzadeh Vasiliki et al. Biopreservation and biobanking 2016 Jun 14(3) 256-9
• Expanding Access to Large-Scale Genomic Data While Promoting Privacy: A Game Theoretic Approach.  
  Wan Zhiyu et al. American journal of human genetics 2017 Jan
• Laboratory and clinical genomic data sharing is crucial to improving genetic health care: a position statement of the American College of Medical Genetics and Genomics.  
  Acmg Board Of Directors et al. Genetics in medicine : official journal of the American College of Medical Genetics 2017 Jan
• Access policies in biobank research: what criteria do they include and how publicly available are they? A cross-sectional study.  
  Langhof Holger et al. European journal of human genetics : EJHG 2016 Dec
• Pooling and expanding registries of familial hypercholesterolaemia to assess gaps in care and improve disease management and outcomes: Rationale and design of the global EAS Familial Hypercholesterolaemia Studies Collaboration.  
   et al. Atherosclerosis. Supplements 2016 Dec
• Conducting a large, multi-site survey about patients' views on broad consent: challenges and solutions.  
  Smith Maureen E et al. BMC medical research methodology 2016 Nov 16(1) 162

more