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Last Posted: Mar 30, 2017

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• "Still Rather Hazy at Present": Citizens' and Physicians' Views on Returning Results from Biobank Research Using Broad Consent.  
  Barazzetti Gaia et al. Genetic testing and molecular biomarkers 2017 Mar 21(3) 159-165
• Clinical utility of a self-administered questionnaire for assessment of hereditary gynecologic cancer.  
  Masuda Kenta et al. Japanese journal of clinical oncology 2017 Dec 1-6
• Ethical Issues Surrounding Personalized Medicine: A Literature Review.  
  Salari Pooneh et al. Acta medica Iranica 2017 Mar 55(3) 209-217
• Informed Consent: The Case of “-Omics” Literacy  
  Hammer Marilyn et al. Oncology nursing forum 2017 44(1) 28-30
• Research Ethics 2.0: New Perspectives on Norms, Values, and Integrity in Genomic Research in Times of Even Scarcer Resources.  
  Brall Caroline et al. Public health genomics 2017 Mar
• Informed Consent  
  J Drazen et al, NEJM, March 2017
• The Sudden Death in the Young Case Registry: Collaborating to Understand and Reduce Mortality.  
  Burns Kristin M et al. Pediatrics 2017 Mar 139(3)
• Revamping the US Federal Common Rule: Modernizing Human Participant Research Regulations.  
  Hodge James G et al. JAMA 2017 Feb
• "I think we've got too many tests!": Prenatal providers' reflections on ethical and clinical challenges in the practice integration of cell-free DNA screening.  
  Gammon B L et al. Ethics, medicine, and public health 2(3) 334-342
• Engaging Hmong adults in genomic and pharmacogenomic research: Toward reducing health disparities in genomic knowledge using a community-based participatory research approach.  
  Culhane-Pera Kathleen A et al. Journal of community genetics 2017 Jan
• A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents.  
  Chen Stephanie C et al. The American journal of bioethics : AJOB 2017 Jan 17(1) 3-18
• Ethics of genetic testing and research in sport: a position statement from the Australian Institute of Sport.  
  Vlahovich Nicole et al. British journal of sports medicine 2016 Nov
• Health literacy and the perception of risk in a breast cancer family history clinic.  
  Rutherford E J et al. The surgeon : journal of the Royal Colleges of Surgeons of Edinburgh and Ireland 2016 Nov
• Establishing and managing a periodontal biobank for research: the sharing of experience.  
  Vaithilingam R D et al. Oral diseases 2015 Jan 21(1) e62-9
• Communicating BRCA research results to patients enrolled in international clinical trials: lessons learnt from the AGO-OVAR 16 study.  
  Pulford David J et al. BMC medical ethics 2016 Oct 17(1) 63
• Informed decision-making about prenatal cfDNA screening: An assessment of written materials.  
  Michie Marsha et al. Ethics, medicine, and public health 2(3) 362-371

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