An Observational Study of Children's Involvement in Informed Consent for Exome Sequencing Research. External Web Site Icon Miller Victoria A et al. Journal of empirical research on human research ethics : JERHRE 2017 Feb 12(1) 6-13

https://phgkb.cdc.gov/GAPPKB/phgHome.do




Last Posted: Apr 13, 2017

---

• An Observational Study of Children's Involvement in Informed Consent for Exome Sequencing Research.  
  Miller Victoria A et al. Journal of empirical research on human research ethics : JERHRE 2017 Feb 12(1) 6-13
• Choices for return of primary and secondary genomic research results of 790 members of families with Mendelian disease.  
  Fiallos Katie et al. European journal of human genetics : EJHG 2017 Mar
• Expect the unexpected: screening for secondary findings in clinical genomics research.  
  Mackley Michael P et al. British medical bulletin 2017 Apr 1-14
• Personalized medicine in the paediatric population: the balance between pharmacogenetics progress and bioethics.  
  Schiavone Stefania et al. Current pharmaceutical biotechnology 2017 Feb
• "Still Rather Hazy at Present": Citizens' and Physicians' Views on Returning Results from Biobank Research Using Broad Consent.  
  Barazzetti Gaia et al. Genetic testing and molecular biomarkers 2017 Mar 21(3) 159-165
• Clinical utility of a self-administered questionnaire for assessment of hereditary gynecologic cancer.  
  Masuda Kenta et al. Japanese journal of clinical oncology 2017 Dec 1-6
• Ethical Issues Surrounding Personalized Medicine: A Literature Review.  
  Salari Pooneh et al. Acta medica Iranica 2017 Mar 55(3) 209-217
• Informed Consent: The Case of “-Omics” Literacy  
  Hammer Marilyn et al. Oncology nursing forum 2017 44(1) 28-30
• Research Ethics 2.0: New Perspectives on Norms, Values, and Integrity in Genomic Research in Times of Even Scarcer Resources.  
  Brall Caroline et al. Public health genomics 2017 Mar
• Informed Consent  
  J Drazen et al, NEJM, March 2017
• The Sudden Death in the Young Case Registry: Collaborating to Understand and Reduce Mortality.  
  Burns Kristin M et al. Pediatrics 2017 Mar 139(3)
• Revamping the US Federal Common Rule: Modernizing Human Participant Research Regulations.  
  Hodge James G et al. JAMA 2017 Feb
• "I think we've got too many tests!": Prenatal providers' reflections on ethical and clinical challenges in the practice integration of cell-free DNA screening.  
  Gammon B L et al. Ethics, medicine, and public health 2(3) 334-342
• Engaging Hmong adults in genomic and pharmacogenomic research: Toward reducing health disparities in genomic knowledge using a community-based participatory research approach.  
  Culhane-Pera Kathleen A et al. Journal of community genetics 2017 Jan
• A Framework for Unrestricted Prenatal Whole-Genome Sequencing: Respecting and Enhancing the Autonomy of Prospective Parents.  
  Chen Stephanie C et al. The American journal of bioethics : AJOB 2017 Jan 17(1) 3-18
• Ethics of genetic testing and research in sport: a position statement from the Australian Institute of Sport.  
  Vlahovich Nicole et al. British journal of sports medicine 2016 Nov

more