Data sharing|https://phgkb.cdc.gov/GAPPKB/phgHome.do|Data sharing

https://phgkb.cdc.gov/GAPPKB/phgHome.do




Last Posted: Apr 27, 2017

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• Massive-scale genomic data sharing to improve rare disease diagnosis  
  D MacArthur VIDEO presentation, Scripps Institute, Future of Genomic Medicine 2017
• Sharing Genome Data  
  C Wright, TGMI Blog Post, April 2017
• Sharing Data to Build a Medical Information Commons: From Bermuda to the Global Alliance.  
  Cook-Deegan Robert et al. Annual review of genomics and human genetics 2017 Apr
• De-identified genomic data sharing: the research participant perspective.  
  Goodman Deborah et al. Journal of community genetics 2017 Apr
• Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US.  
  Sanderson Saskia C et al. American journal of human genetics 2017 Mar 100(3) 414-427
• A qualitative study of adolescents' understanding of biobanks and their attitudes toward participation, re-contact, and data sharing.  
  Murad Andrea M et al. American journal of medical genetics. Part A 2017 Apr 173(4) 930-937
• Ethical Legal and Social Issues of Biobanking: Past, Present, and Future.  
  Bledsoe Marianna J et al. Biopreservation and biobanking 2017 Apr
• Bedside Back to Bench: Building Bridges between Basic and Clinical Genomic Research.  
  Manolio Teri A et al. Cell 2017 Mar 169(1) 6-12
• Towards a Global Cancer Knowledge Network: Dissecting the current international cancer genomic sequencing landscape.  
  Vis D J et al. Annals of oncology : official journal of the European Society for Medical Oncology 2017 Feb
• Personalized medicine as a model of care to improve patient outcomes, communication, and reduce cost.  
  Davis John M et al. Journal of clinical oncology : official journal of the American Society of Clinical Oncology 2016 Jan 34(3_suppl) e270
• Regulation of genomic and biobanking research in Africa: a content analysis of ethics guidelines, policies and procedures from 22 African countries.  
  de Vries Jantina et al. BMC medical ethics 2017 Feb 18(1) 8
• The Undiagnosed Diseases Network: Accelerating Discovery about Health and Disease.  
  Ramoni Rachel B et al. American journal of human genetics 2017 Feb 100(2) 185-192
• Evolving health care through personal genomics.  
  Rehm Heidi L et al. Nature reviews. Genetics 2017 Jan
• Ten Simple Rules to Enable Multi-site Collaborations through Data Sharing  
  MR Boland et al, Plos Comp Biol, January 2017
• Ten Simple Rules to Enable Multi-site Collaborations through Data Sharing.  
  Boland Mary Regina et al. PLoS computational biology 2017 Jan (1) e1005278
• An International Framework for Data Sharing: Moving Forward with the Global Alliance for Genomics and Health.  
  Rahimzadeh Vasiliki et al. Biopreservation and biobanking 2016 Jun 14(3) 256-9

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